Bill Commons

NY S 1287

passed both

Establishes the rare disease advisory council

New York · 2025-2026 Regular Session · upper

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Quick answers

Did NY S 1287 pass?

Not yet law. NY S 1287 has passed both chambers but has not been enacted. Latest recorded action (2026-03-10): RETURNED TO SENATE

What is NY S 1287 about?

Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.

Who sponsors NY S 1287?

Roxanne J. Persaud is the primary sponsor of NY S 1287, joined by 14 cosponsors.

Description

Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.

Introduced
—
Latest action
2026-03-10 — RETURNED TO SENATE
Bill type
bill
Last updated
—

Sponsors

  • Roxanne J. Persaudprimary
  • Joseph P. Addabbo Jr.cosponsor
  • Jake Ashbycosponsor
  • Cordell Clearecosponsor
  • Leroy Comriecosponsor
  • Jeremy Cooneycosponsor
  • Nathalia Fernandezcosponsor
  • Patrick M. Gallivancosponsor
  • Pamela Helmingcosponsor
  • Brad Hoylman-Sigalcosponsor
  • Jack M. Martinscosponsor
  • Rachel Maycosponsor
  • Dean Murraycosponsor
  • Gustavo Riveracosponsor
  • Lea Webbcosponsor

Committees

Not provided by source.

Action timeline

Newest first

  1. 2026-03-10

    RETURNED TO SENATE

  2. 2026-03-10

    PASSED ASSEMBLY

    passage

  3. 2026-03-10

    ORDERED TO THIRD READING CAL.47

  4. 2026-03-10

    SUBSTITUTED FOR A1296B

  5. 2026-02-10

    REFERRED TO WAYS AND MEANS

    referral-committee

  6. 2026-02-10

    DELIVERED TO ASSEMBLY

  7. 2026-02-10

    PASSED SENATE

    passage

  8. 2026-02-09

    ADVANCED TO THIRD READING

  9. 2026-02-05

    2ND REPORT CAL.

  10. 2026-02-04

    1ST REPORT CAL.283

  11. 2026-01-08

    PRINT NUMBER 1287B

    amendment-passage

  12. 2026-01-08

    AMEND AND RECOMMIT TO HEALTH

    amendment-passage,referral-committee

  13. 2026-01-07

    REFERRED TO HEALTH

    referral-committee

  14. 2026-01-07

    RETURNED TO SENATE

  15. 2026-01-07

    DIED IN ASSEMBLY

  16. 2025-05-29

    ORDERED TO THIRD READING RULES CAL.291

  17. 2025-05-29

    SUBSTITUTED FOR A1296A

  18. 2025-03-19

    REFERRED TO WAYS AND MEANS

    referral-committee

  19. 2025-03-19

    DELIVERED TO ASSEMBLY

  20. 2025-03-19

    PASSED SENATE

    passage

  21. 2025-03-10

    ADVANCED TO THIRD READING

  22. 2025-03-05

    2ND REPORT CAL.

  23. 2025-03-04

    1ST REPORT CAL.487

  24. 2025-01-30

    PRINT NUMBER 1287A

    amendment-passage

  25. 2025-01-30

    AMEND AND RECOMMIT TO HEALTH

    amendment-passage,referral-committee

  26. 2025-01-09

    REFERRED TO HEALTH

    referral-committee

Versions

Documents

Votes

  • Health Vote - Version: A

    2025-03-04 · pass · 15-0

    Member-level votes (15)
    • Jake Ashby: yes
    • Samra Brouk: yes
    • Simcha Felder: yes
    • Patrick M. Gallivan: yes
    • Kristen Gonzalez: yes
    • Brad Hoylman-Sigal: yes
    • Robert Jackson: yes
    • Jack M. Martins: yes
    • Zellnor Myrie: yes
    • Kevin S. Parker: yes
    • Steve Rhoads: yes
    • Gustavo Rivera: yes
    • Christopher Ryan: yes
    • Dan Stec: yes
    • Lea Webb: yes
  • Floor Vote - Version: A

    2025-03-19 · pass · 60-0

    Member-level votes (63)
    • Joseph P. Addabbo Jr.: yes
    • Jake Ashby: yes
    • Jamaal Bailey: yes
    • April Baskin: yes
    • George Borrello: yes
    • Jabari Brisport: yes
    • Samra Brouk: yes
    • Siela Bynoe: yes
    • Patricia Canzoneri-Fitzpatrick: yes
    • Stephen T. Chan: yes
    • Cordell Cleare: yes
    • Leroy Comrie: yes
    • Jeremy Cooney: yes
    • Patricia Fahy: yes
    • Nathalia Fernandez: yes
    • Patrick M. Gallivan: yes
    • Michael Gianaris: yes
    • Kristen Gonzalez: yes
    • Andrew Gounardes: yes
    • Joseph A. Griffo: yes
    • Pete Harckham: yes
    • Pamela Helming: yes
    • Michelle Hinchey: yes
    • Brad Hoylman-Sigal: yes
    • Robert Jackson: yes
    • Brian Kavanagh: yes
    • Liz Krueger: yes
    • Andrew J. Lanza: yes
    • John Liu: yes
    • Monica Martinez: yes
    • Jack M. Martins: yes
    • Mario Mattera: yes
    • Rachel May: yes
    • Shelley Mayer: yes
    • Dean Murray: yes
    • Thomas F. O'Mara: yes
    • Peter Oberacker: yes
    • Robert Ortt: yes
    • Anthony H. Palumbo: yes
    • Kevin S. Parker: yes
    • Roxanne J. Persaud: yes
    • Jessica Ramos: yes
    • Steve Rhoads: yes
    • Gustavo Rivera: yes
    • Robert Rolison: yes
    • Christopher Ryan: yes
    • Sean Ryan: yes
    • Julia Salazar: yes
    • James Sanders Jr.: yes
    • Jessica Scarcella-Spanton: yes
    • José M. Serrano: yes
    • James Skoufis: yes
    • Toby Ann Stavisky: yes
    • Dan Stec: yes
    • Andrea Stewart-Cousins: yes
    • James Tedisco: yes
    • Mark Walczyk: yes
    • Lea Webb: yes
    • William Weber: yes
    • Alexis Weik: yes
    • Simcha Felder: excused
    • Zellnor Myrie: excused
    • Luis R. Sepúlveda: excused
  • Health Vote - Version: B

    2026-02-04 · pass · 14-0

    Member-level votes (15)
    • Jake Ashby: yes
    • Patrick M. Gallivan: yes
    • Kristen Gonzalez: yes
    • Robert Jackson: yes
    • Jack M. Martins: yes
    • Rachel May: yes
    • Zellnor Myrie: yes
    • Kevin S. Parker: yes
    • Steve Rhoads: yes
    • Gustavo Rivera: yes
    • Christopher Ryan: yes
    • Dan Stec: yes
    • Sam Sutton: yes
    • Lea Webb: yes
    • Samra Brouk: excused
  • Floor Vote - Version: B

    2026-02-10 · pass · 62-0

    Member-level votes (63)
    • Joseph P. Addabbo Jr.: yes
    • Jake Ashby: yes
    • Jamaal Bailey: yes
    • April Baskin: yes
    • George Borrello: yes
    • Erik Bottcher: yes
    • Jabari Brisport: yes
    • Siela Bynoe: yes
    • Patricia Canzoneri-Fitzpatrick: yes
    • Stephen T. Chan: yes
    • Cordell Cleare: yes
    • Leroy Comrie: yes
    • Jeremy Cooney: yes
    • Patricia Fahy: yes
    • Nathalia Fernandez: yes
    • Patrick M. Gallivan: yes
    • Michael Gianaris: yes
    • Kristen Gonzalez: yes
    • Andrew Gounardes: yes
    • Joseph A. Griffo: yes
    • Pete Harckham: yes
    • Pamela Helming: yes
    • Michelle Hinchey: yes
    • Robert Jackson: yes
    • Brian Kavanagh: yes
    • Liz Krueger: yes
    • Andrew J. Lanza: yes
    • John Liu: yes
    • Monica Martinez: yes
    • Jack M. Martins: yes
    • Mario Mattera: yes
    • Rachel May: yes
    • Shelley Mayer: yes
    • Dean Murray: yes
    • Zellnor Myrie: yes
    • Thomas F. O'Mara: yes
    • Peter Oberacker: yes
    • Robert Ortt: yes
    • Anthony H. Palumbo: yes
    • Kevin S. Parker: yes
    • Roxanne J. Persaud: yes
    • Jessica Ramos: yes
    • Steve Rhoads: yes
    • Gustavo Rivera: yes
    • Robert Rolison: yes
    • Christopher Ryan: yes
    • Julia Salazar: yes
    • James Sanders Jr.: yes
    • Jessica Scarcella-Spanton: yes
    • Luis R. Sepúlveda: yes
    • José M. Serrano: yes
    • James Skoufis: yes
    • Toby Ann Stavisky: yes
    • Dan Stec: yes
    • Andrea Stewart-Cousins: yes
    • Sam Sutton: yes
    • James Tedisco: yes
    • Mark Walczyk: yes
    • Lea Webb: yes
    • William Weber: yes
    • Alexis Weik: yes
    • Jeremy Zellner: yes
    • Samra Brouk: excused
  • Assembly Vote

    2026-03-10 · pass · 143-0

    Member-level votes (150)
    • Alvarez: yes
    • Carroll P: yes
    • Friend: yes
    • Lemondes: yes
    • Pheffer Amato: yes
    • Slater: yes
    • Anderson: yes
    • Carroll RC: yes
    • Gallagher: yes
    • Levenberg: yes
    • Pirozzolo: yes
    • Smith: yes
    • Angelino: yes
    • Cashman: yes
    • Gallahan: yes
    • Lucas: yes
    • Powers: yes
    • Smullen: yes
    • Bailey: yes
    • Chandler-Waterm: yes
    • Gandolfo: yes
    • Lunsford: yes
    • Pretlow: yes
    • Solages: yes
    • Barclay: yes
    • Chang: yes
    • Gibbs: yes
    • Lupardo: yes
    • Ra: yes
    • Steck: yes
    • Barrett: yes
    • Chludzinski: yes
    • Giglio: yes
    • Magnarelli: yes
    • Raga: yes
    • Stern: yes
    • Beephan: yes
    • Clark: yes
    • Glick: yes
    • Maher: excused
    • Rajkumar: yes
    • Stirpe: yes
    • Bendett: yes
    • Colton: yes
    • Gonzalez-Rojas: yes
    • Manktelow: yes
    • Ramos: yes
    • Tague: yes
    • Benedetto: yes
    • Conrad: yes
    • Gray: excused
    • McDonald: yes
    • Reilly: yes
    • Tannousis: yes
    • Berger: yes
    • Cook: excused
    • Griffin: yes
    • McDonough: yes
    • Reyes: yes
    • Tapia: yes
    • Bichotte Hermel: yes
    • Cruz: yes
    • Hawley: yes
    • McMahon: yes
    • Rivera: yes
    • Taylor: yes
    • Blankenbush: yes
    • Cunningham: yes
    • Hevesi: yes
    • Meeks: yes
    • Romero: yes
    • Torres: yes
    • Blumencranz: yes
    • Dais: yes
    • Hooks: yes
    • Mikulin: yes
    • Rosenthal: yes
    • Valdez: excused
    • Bologna: yes
    • Davila: yes
    • Hunter: yes
    • Miller: yes
    • Rozic: yes
    • Vanel: yes
    • Bores: yes
    • De Los Santos: yes
    • Hyndman: yes
    • Mitaynes: yes
    • Santabarbara: yes
    • Walker: yes
    • Brabenec: yes
    • DeStefano: yes
    • Jackson: yes
    • Molitor: yes
    • Sayegh: yes
    • Walsh: yes
    • Braunstein: yes
    • Dilan: yes
    • Jacobson: yes
    • Moreno: yes
    • Schiavoni: yes
    • Weprin: yes
    • Bronson: yes
    • Dinowitz: yes
    • Jensen: yes
    • Morinello: yes
    • Seawright: yes
    • Wieder: yes
    • Brook-Krasny: yes
    • DiPietro: yes
    • Kassay: yes
    • Norber: yes
    • Sempolinski: yes
    • Williams: excused
    • Brown EA: yes
    • Durso: yes
    • Kay: yes
    • Novakhov: yes
    • Septimo: yes
    • Woerner: yes
    • Brown K: yes
    • Eachus: yes
    • Kelles: yes
    • O'Pharrow: yes
    • Shimsky: yes
    • Wright: yes
    • Burdick: yes
    • Eichenstein: yes
    • Kim: yes
    • Otis: yes
    • Shrestha: yes
    • Yeger: yes
    • Burke: yes
    • Fall: yes
    • Lasher: yes
    • Palmesano: yes
    • Simon: yes
    • Zaccaro: excused
    • Burroughs: yes
    • Fitzpatrick: yes
    • Lavine: yes
    • Paulin: yes
    • Simone: yes
    • Zinerman: yes
    • Buttenschon: yes
    • Forrest: yes
    • Lee: yes
    • Peoples-Stokes: excused
    • Simpson: yes
    • Mr. Speaker: yes

Related bills

  • Prior session: S 9724not in this corpus
  • Companion bill: A 1296

Official source

Attribution

Data from openstates_bulk_csv, retrieved 2026-07-24T05:28:30.722574Z

Inspect retained evidence for changes recorded after evidence tracking began:

Session-wide evidence can include changes to other bills:

Use this data

Every field on this page is available from the free public API — no key or licence required. Fetch this bill as JSON: GET /api/v1/bills?jurisdiction=NY&identifier=S 1287. See the API docs or the MCP server for AI assistants.

Known limitations

  • Sponsor party and chamber affiliation are not yet captured by this API.
  • Committee referrals are not yet captured.

See the methodology page for data sources and limitations.