NY A 1296
in committeeEstablishes the rare disease advisory council
New York · 2025-2026 Regular Session · lower
Description
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
- Introduced
- —
- Status date
- —
- Latest action
- 2026-03-10 — SUBSTITUTED BY S1287B
- Bill type
- bill
- Last updated
- —
Sponsors
- Amy Paulinprimary
- Nader Sayeghcosponsor
- Nikki Lucascosponsor
- Joe DeStefanocosponsor
- John T. McDonald IIIcosponsor
- Steven Otiscosponsor
- David Weprincosponsor
- Samuel Pirozzolocosponsor
- Daniel Norbercosponsor
- Michael Novakhovcosponsor
- Lester Changcosponsor
- George Alvarezcosponsor
- Jeffrey Dinowitzcosponsor
- Erik Dilancosponsor
- Linda Rosenthalcosponsor
- Aron Wiedercosponsor
- Brian Manktelowcosponsor
- Angelo J. Morinellocosponsor
- Joe Angelinocosponsor
- Rebecca Kassaycosponsor
- William Coltoncosponsor
- John Lemondescosponsor
- Judy Griffincosponsor
- Joseph Sempolinskicosponsor
- Albert A. Stirpecosponsor
- Michael Dursocosponsor
- John K. Mikulincosponsor
- MaryJane Shimskycosponsor
Committees
Not provided by source.
Action timeline
2025-01-09
REFERRED TO HEALTH
referral-committee
2025-01-29
AMEND AND RECOMMIT TO HEALTH
amendment-passage,referral-committee
2025-01-29
PRINT NUMBER 1296A
amendment-passage
2025-02-04
REPORTED REFERRED TO WAYS AND MEANS
referral-committee
2025-05-27
REPORTED REFERRED TO RULES
referral-committee
2025-05-29
REPORTED
2025-05-29
RULES REPORT CAL.291
2025-05-29
ORDERED TO THIRD READING RULES CAL.291
2025-05-29
SUBSTITUTED BY S1287A
2026-01-07
ORDERED TO THIRD READING CAL.47
2026-01-12
AMENDED ON THIRD READING 1296B
amendment-passage
2026-03-10
SUBSTITUTED BY S1287B
Versions
Documents
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- text/html(no extracted text yet)
- application/pdf(no extracted text yet)
- application/pdf(no extracted text yet)
Votes
Not provided by source.
Related bills
Official source
Attribution
Data from openstates_bulk_csv, retrieved 2026-07-24T05:28:30.722574Z
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