Bill Commons

NY A 1296

substituted

Establishes the rare disease advisory council

New York · 2025-2026 Regular Session · lower

Quick answers

Did NY A 1296 pass?

The current status of NY A 1296 is not known from the official record. Latest recorded action (2026-03-10): SUBSTITUTED BY S1287B

What is NY A 1296 about?

Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.

Who sponsors NY A 1296?

Amy Paulin is the primary sponsor of NY A 1296, joined by 27 cosponsors.

Description

Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.

Introduced
—
Latest action
2026-03-10 — SUBSTITUTED BY S1287B
Bill type
bill
Last updated
—

Sponsors

  • Amy Paulinprimary
  • Nader Sayeghcosponsor
  • Nikki Lucascosponsor
  • Joe DeStefanocosponsor
  • John T. McDonald IIIcosponsor
  • Steven Otiscosponsor
  • David Weprincosponsor
  • Samuel Pirozzolocosponsor
  • Daniel Norbercosponsor
  • Michael Novakhovcosponsor
  • Lester Changcosponsor
  • George Alvarezcosponsor
  • Jeffrey Dinowitzcosponsor
  • Erik Dilancosponsor
  • Linda Rosenthalcosponsor
  • Aron Wiedercosponsor
  • Brian Manktelowcosponsor
  • Angelo J. Morinellocosponsor
  • Joe Angelinocosponsor
  • Rebecca Kassaycosponsor
  • William Coltoncosponsor
  • John Lemondescosponsor
  • Judy Griffincosponsor
  • Joseph Sempolinskicosponsor
  • Albert A. Stirpecosponsor
  • Michael Dursocosponsor
  • John K. Mikulincosponsor
  • MaryJane Shimskycosponsor

Committees

Not provided by source.

Action timeline

  1. 2025-01-09

    REFERRED TO HEALTH

    referral-committee

  2. 2025-01-29

    AMEND AND RECOMMIT TO HEALTH

    amendment-passage,referral-committee

  3. 2025-01-29

    PRINT NUMBER 1296A

    amendment-passage

  4. 2025-02-04

    REPORTED REFERRED TO WAYS AND MEANS

    referral-committee

  5. 2025-05-27

    REPORTED REFERRED TO RULES

    referral-committee

  6. 2025-05-29

    REPORTED

  7. 2025-05-29

    RULES REPORT CAL.291

  8. 2025-05-29

    ORDERED TO THIRD READING RULES CAL.291

  9. 2025-05-29

    SUBSTITUTED BY S1287A

  10. 2026-01-07

    ORDERED TO THIRD READING CAL.47

  11. 2026-01-12

    AMENDED ON THIRD READING 1296B

    amendment-passage

  12. 2026-03-10

    SUBSTITUTED BY S1287B

Versions

Documents

Votes

Not provided by source.

Related bills

  • substituted-by: S 1287B
  • Prior session: A 10292not in this corpus
  • Companion bill: S 1287

Official source

https://legislation.nysenate.gov/api/3/bills/2025-2026/A1296?summary=&detail=

Attribution

Data from openstates_bulk_csv, retrieved 2026-07-24T05:28:30.722574Z

Inspect retained evidence for changes recorded after evidence tracking began:

Source and document changesStatus and relationship changes

Use this data

Every field on this page is available from the free public API — no key or licence required. Fetch this bill as JSON: GET /api/v1/bills?jurisdiction=NY&identifier=A 1296. See the API docs or the MCP server for AI assistants.

Known limitations

  • Sponsor party and chamber affiliation are not yet captured by this API.
  • Committee referrals are not yet captured.

See the methodology page for data sources and limitations.