NY S 1287

passed both

Establishes the rare disease advisory council

New York · 2025-2026 Regular Session · upper

Quick answers

Did NY S 1287 pass?

Not yet law. NY S 1287 has passed both chambers but has not been enacted as of 2026-03-10. Latest recorded action (2026-03-10): RETURNED TO SENATE

What is NY S 1287 about?

Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.

Who sponsors NY S 1287?

Roxanne J. Persaud is the primary sponsor of NY S 1287, joined by 14 cosponsors.

Description

Introduced: —
Latest action: 2026-03-10 — RETURNED TO SENATE
Bill type: bill
Last updated: —

Committees

Not provided by source.

Action timeline

2025-01-09
REFERRED TO HEALTH
referral-committee
2025-01-30
AMEND AND RECOMMIT TO HEALTH
amendment-passage,referral-committee
2025-01-30
PRINT NUMBER 1287A
amendment-passage
2025-03-04
1ST REPORT CAL.487
2025-03-05
2ND REPORT CAL.
2025-03-10
ADVANCED TO THIRD READING
2025-03-19
PASSED SENATE
passage
2025-03-19
DELIVERED TO ASSEMBLY
2025-03-19
REFERRED TO WAYS AND MEANS
referral-committee
2025-05-29
SUBSTITUTED FOR A1296A
2025-05-29
ORDERED TO THIRD READING RULES CAL.291
2026-01-07
DIED IN ASSEMBLY
2026-01-07
RETURNED TO SENATE
2026-01-07
REFERRED TO HEALTH
referral-committee
2026-01-08
AMEND AND RECOMMIT TO HEALTH
amendment-passage,referral-committee
2026-01-08
PRINT NUMBER 1287B
amendment-passage
2026-02-04
1ST REPORT CAL.283
2026-02-05
2ND REPORT CAL.
2026-02-09
ADVANCED TO THIRD READING
2026-02-10
PASSED SENATE
passage
2026-02-10
DELIVERED TO ASSEMBLY
2026-02-10
REFERRED TO WAYS AND MEANS
referral-committee
2026-03-10
SUBSTITUTED FOR A1296B
2026-03-10
ORDERED TO THIRD READING CAL.47
2026-03-10
PASSED ASSEMBLY
passage
2026-03-10
RETURNED TO SENATE

Versions

S1287Compare
S1287ACompare
S1287BCompare

Documents

Votes

Health Vote - Version: A
2025-03-04 · pass · 15-0
Member-level votes (15)
- Jake Ashby: yes
- Samra Brouk: yes
- Simcha Felder: yes
- Patrick M. Gallivan: yes
- Kristen Gonzalez: yes
- Brad Hoylman-Sigal: yes
- Robert Jackson: yes
- Jack M. Martins: yes
- Zellnor Myrie: yes
- Kevin S. Parker: yes
- Steve Rhoads: yes
- Gustavo Rivera: yes
- Christopher Ryan: yes
- Dan Stec: yes
- Lea Webb: yes
Floor Vote - Version: A
2025-03-19 · pass · 60-0
Member-level votes (63)
- Joseph P. Addabbo Jr.: yes
- Jake Ashby: yes
- Jamaal Bailey: yes
- April Baskin: yes
- George Borrello: yes
- Jabari Brisport: yes
- Samra Brouk: yes
- Siela Bynoe: yes
- Patricia Canzoneri-Fitzpatrick: yes
- Stephen T. Chan: yes
- Cordell Cleare: yes
- Leroy Comrie: yes
- Jeremy Cooney: yes
- Patricia Fahy: yes
- Nathalia Fernandez: yes
- Patrick M. Gallivan: yes
- Michael Gianaris: yes
- Kristen Gonzalez: yes
- Andrew Gounardes: yes
- Joseph A. Griffo: yes
- Pete Harckham: yes
- Pamela Helming: yes
- Michelle Hinchey: yes
- Brad Hoylman-Sigal: yes
- Robert Jackson: yes
- Brian Kavanagh: yes
- Liz Krueger: yes
- Andrew J. Lanza: yes
- John Liu: yes
- Monica Martinez: yes
- Jack M. Martins: yes
- Mario Mattera: yes
- Rachel May: yes
- Shelley Mayer: yes
- Dean Murray: yes
- Thomas F. O'Mara: yes
- Peter Oberacker: yes
- Robert Ortt: yes
- Anthony H. Palumbo: yes
- Kevin S. Parker: yes
- Roxanne J. Persaud: yes
- Jessica Ramos: yes
- Steve Rhoads: yes
- Gustavo Rivera: yes
- Robert Rolison: yes
- Christopher Ryan: yes
- Sean Ryan: yes
- Julia Salazar: yes
- James Sanders Jr.: yes
- Jessica Scarcella-Spanton: yes
- José M. Serrano: yes
- James Skoufis: yes
- Toby Ann Stavisky: yes
- Dan Stec: yes
- Andrea Stewart-Cousins: yes
- James Tedisco: yes
- Mark Walczyk: yes
- Lea Webb: yes
- William Weber: yes
- Alexis Weik: yes
- Simcha Felder: excused
- Zellnor Myrie: excused
- Luis R. Sepúlveda: excused
Health Vote - Version: B
2026-02-04 · pass · 14-0
Member-level votes (15)
- Jake Ashby: yes
- Patrick M. Gallivan: yes
- Kristen Gonzalez: yes
- Robert Jackson: yes
- Jack M. Martins: yes
- Rachel May: yes
- Zellnor Myrie: yes
- Kevin S. Parker: yes
- Steve Rhoads: yes
- Gustavo Rivera: yes
- Christopher Ryan: yes
- Dan Stec: yes
- Sam Sutton: yes
- Lea Webb: yes
- Samra Brouk: excused
Floor Vote - Version: B
2026-02-10 · pass · 62-0
Member-level votes (63)
- Joseph P. Addabbo Jr.: yes
- Jake Ashby: yes
- Jamaal Bailey: yes
- April Baskin: yes
- George Borrello: yes
- Erik Bottcher: yes
- Jabari Brisport: yes
- Siela Bynoe: yes
- Patricia Canzoneri-Fitzpatrick: yes
- Stephen T. Chan: yes
- Cordell Cleare: yes
- Leroy Comrie: yes
- Jeremy Cooney: yes
- Patricia Fahy: yes
- Nathalia Fernandez: yes
- Patrick M. Gallivan: yes
- Michael Gianaris: yes
- Kristen Gonzalez: yes
- Andrew Gounardes: yes
- Joseph A. Griffo: yes
- Pete Harckham: yes
- Pamela Helming: yes
- Michelle Hinchey: yes
- Robert Jackson: yes
- Brian Kavanagh: yes
- Liz Krueger: yes
- Andrew J. Lanza: yes
- John Liu: yes
- Monica Martinez: yes
- Jack M. Martins: yes
- Mario Mattera: yes
- Rachel May: yes
- Shelley Mayer: yes
- Dean Murray: yes
- Zellnor Myrie: yes
- Thomas F. O'Mara: yes
- Peter Oberacker: yes
- Robert Ortt: yes
- Anthony H. Palumbo: yes
- Kevin S. Parker: yes
- Roxanne J. Persaud: yes
- Jessica Ramos: yes
- Steve Rhoads: yes
- Gustavo Rivera: yes
- Robert Rolison: yes
- Christopher Ryan: yes
- Julia Salazar: yes
- James Sanders Jr.: yes
- Jessica Scarcella-Spanton: yes
- Luis R. Sepúlveda: yes
- José M. Serrano: yes
- James Skoufis: yes
- Toby Ann Stavisky: yes
- Dan Stec: yes
- Andrea Stewart-Cousins: yes
- Sam Sutton: yes
- James Tedisco: yes
- Mark Walczyk: yes
- Lea Webb: yes
- William Weber: yes
- Alexis Weik: yes
- Jeremy Zellner: yes
- Samra Brouk: excused
Assembly Vote
2026-03-10 · pass · 143-0
Member-level votes (150)
- Alvarez: yes
- Carroll P: yes
- Friend: yes
- Lemondes: yes
- Pheffer Amato: yes
- Slater: yes
- Anderson: yes
- Carroll RC: yes
- Gallagher: yes
- Levenberg: yes
- Pirozzolo: yes
- Smith: yes
- Angelino: yes
- Cashman: yes
- Gallahan: yes
- Lucas: yes
- Powers: yes
- Smullen: yes
- Bailey: yes
- Chandler-Waterm: yes
- Gandolfo: yes
- Lunsford: yes
- Pretlow: yes
- Solages: yes
- Barclay: yes
- Chang: yes
- Gibbs: yes
- Lupardo: yes
- Ra: yes
- Steck: yes
- Barrett: yes
- Chludzinski: yes
- Giglio: yes
- Magnarelli: yes
- Raga: yes
- Stern: yes
- Beephan: yes
- Clark: yes
- Glick: yes
- Maher: excused
- Rajkumar: yes
- Stirpe: yes
- Bendett: yes
- Colton: yes
- Gonzalez-Rojas: yes
- Manktelow: yes
- Ramos: yes
- Tague: yes
- Benedetto: yes
- Conrad: yes
- Gray: excused
- McDonald: yes
- Reilly: yes
- Tannousis: yes
- Berger: yes
- Cook: excused
- Griffin: yes
- McDonough: yes
- Reyes: yes
- Tapia: yes
- Bichotte Hermel: yes
- Cruz: yes
- Hawley: yes
- McMahon: yes
- Rivera: yes
- Taylor: yes
- Blankenbush: yes
- Cunningham: yes
- Hevesi: yes
- Meeks: yes
- Romero: yes
- Torres: yes
- Blumencranz: yes
- Dais: yes
- Hooks: yes
- Mikulin: yes
- Rosenthal: yes
- Valdez: excused
- Bologna: yes
- Davila: yes
- Hunter: yes
- Miller: yes
- Rozic: yes
- Vanel: yes
- Bores: yes
- De Los Santos: yes
- Hyndman: yes
- Mitaynes: yes
- Santabarbara: yes
- Walker: yes
- Brabenec: yes
- DeStefano: yes
- Jackson: yes
- Molitor: yes
- Sayegh: yes
- Walsh: yes
- Braunstein: yes
- Dilan: yes
- Jacobson: yes
- Moreno: yes
- Schiavoni: yes
- Weprin: yes
- Bronson: yes
- Dinowitz: yes
- Jensen: yes
- Morinello: yes
- Seawright: yes
- Wieder: yes
- Brook-Krasny: yes
- DiPietro: yes
- Kassay: yes
- Norber: yes
- Sempolinski: yes
- Williams: excused
- Brown EA: yes
- Durso: yes
- Kay: yes
- Novakhov: yes
- Septimo: yes
- Woerner: yes
- Brown K: yes
- Eachus: yes
- Kelles: yes
- O'Pharrow: yes
- Shimsky: yes
- Wright: yes
- Burdick: yes
- Eichenstein: yes
- Kim: yes
- Otis: yes
- Shrestha: yes
- Yeger: yes
- Burke: yes
- Fall: yes
- Lasher: yes
- Palmesano: yes
- Simon: yes
- Zaccaro: excused
- Burroughs: yes
- Fitzpatrick: yes
- Lavine: yes
- Paulin: yes
- Simone: yes
- Zinerman: yes
- Buttenschon: yes
- Forrest: yes
- Lee: yes
- Peoples-Stokes: excused
- Simpson: yes
- Mr. Speaker: yes

Related bills

Prior session: S 9724not in this corpus
Companion bill: A 1296

Official source

https://legislation.nysenate.gov/api/3/bills/2025-2026/S1287?summary=&detail=

Attribution

Data from openstates_bulk_csv, retrieved 2026-07-24T05:28:30.722574Z

Inspect retained evidence for changes recorded after evidence tracking began:

Source and document changes Status and relationship changes

Use this data

Every field on this page is available from the free public API — no key or licence required. Fetch this bill as JSON: GET /api/v1/bills?jurisdiction=NY&identifier=S 1287. See the API docs or the MCP server for AI assistants.

Known limitations

Sponsor party and chamber affiliation are not yet captured by this API.
Committee referrals are not yet captured.

See the methodology page for data sources and limitations.