MO SB 1582
in committeeSB 1582 - Under this act, the University of Missouri shall establish a governance board that reports to the General Assembly on research projects related to rare pediatric diseases. The act defines a "rare pediatric disease" as a life-threatening or chronically debilitating condition affecting fewer than 200,000 individuals under the age of 18 in the United States. The governance board shall include representatives from University of Missouri health care and research facilities, a patient or family advocate, a nonprofit or industry partner, and appointees from the General Assembly, as specified in the act. The governance board shall submit an annual public report to the General Assembly by December 31 of each year from 2026 to 2029. The report shall include information on research projects initiated and completed, key outcomes achieved, funds expended and leveraged, and any legislative recommendations. The provisions of this act shall expire on June 30, 2030. This act is identical to HB 2740 (2026). OLIVIA SHANNON
Missouri · 2026 Regular Session · upper
Description
SB 1582 - Under this act, the University of Missouri shall establish a governance board that reports to the General Assembly on research projects related to rare pediatric diseases. The act defines a "rare pediatric disease" as a life-threatening or chronically debilitating condition affecting fewer than 200,000 individuals under the age of 18 in the United States. The governance board shall include representatives from University of Missouri health care and research facilities, a patient or family advocate, a nonprofit or industry partner, and appointees from the General Assembly, as specified in the act. The governance board shall submit an annual public report to the General Assembly by December 31 of each year from 2026 to 2029. The report shall include information on research projects initiated and completed, key outcomes achieved, funds expended and leveraged, and any legislative recommendations. The provisions of this act shall expire on June 30, 2030. This act is identical to HB 2740 (2026). OLIVIA SHANNON
- Introduced
- —
- Status date
- —
- Latest action
- 2026-02-05 — Second Read and Referred S Families, Seniors and Health Committee
- Bill type
- bill
- Last updated
- —
Sponsors
- Gregory (21), Kurtisprimary
Committees
Not provided by source.
Action timeline
2026-02-05
Second Read and Referred S Families, Seniors and Health Committee
reading-2,referral-committee
2026-01-22
S First Read
reading-1
Versions
- 6841S.01I - IntroducedCompare
Documents
Votes
Not provided by source.
Related bills
No related bills recorded for this bill.
Official source
Attribution
Data from openstates_bulk_csv, retrieved 2026-07-24T05:25:15.077812Z
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