Bill Commons

NY S 6413

in committee

Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry

New York · 2025-2026 Regular Session · upper

Description

Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.

Introduced
—
Status date
—
Latest action
2025-06-10 — SUBSTITUTED BY A7845
Bill type
bill
Last updated
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Sponsors

  • Jessica Scarcella-Spantonprimary
  • Patricia Fahycosponsor

Committees

Not provided by source.

Action timeline

  1. 2025-03-13

    REFERRED TO HEALTH

    referral-committee

  2. 2025-05-28

    REPORTED AND COMMITTED TO FINANCE

    referral-committee

  3. 2025-06-04

    COMMITTEE DISCHARGED AND COMMITTED TO RULES

    referral-committee

  4. 2025-06-04

    ORDERED TO THIRD READING CAL.1540

  5. 2025-06-10

    SUBSTITUTED BY A7845

Versions

Documents

Votes

  • Health Vote

    2025-05-28 · pass · 13-0

    Member-level votes (15)
    • Jake Ashby: yes
    • Samra Brouk: yes
    • Patrick M. Gallivan: yes
    • Kristen Gonzalez: yes
    • Brad Hoylman-Sigal: yes
    • Robert Jackson: yes
    • Kevin S. Parker: yes
    • Steve Rhoads: yes
    • Gustavo Rivera: yes
    • Christopher Ryan: yes
    • Dan Stec: yes
    • Sam Sutton: yes
    • Lea Webb: yes
    • Jack M. Martins: excused
    • Zellnor Myrie: excused

  • Rules Vote

    2025-06-04 · pass · 20-0

    Member-level votes (21)
    • Joseph P. Addabbo Jr.: yes
    • Jamaal Bailey: yes
    • Leroy Comrie: yes
    • Nathalia Fernandez: yes
    • Patrick M. Gallivan: yes
    • Michael Gianaris: yes
    • Joseph A. Griffo: yes
    • Pete Harckham: yes
    • Brad Hoylman-Sigal: yes
    • Liz Krueger: yes
    • Andrew J. Lanza: yes
    • John Liu: yes
    • Shelley Mayer: yes
    • Robert Ortt: yes
    • Kevin S. Parker: yes
    • Luis R. Sepúlveda: yes
    • Andrea Stewart-Cousins: yes
    • Pamela Helming: yes
    • Thomas F. O'Mara: yes
    • Dan Stec: yes
    • Zellnor Myrie: excused

Related bills

Official source

https://legislation.nysenate.gov/api/3/bills/2025-2026/S6413?summary=&detail=

Attribution

Data from openstates_bulk_csv, retrieved 2026-07-24T05:28:30.722574Z

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